Beat Nb - neuroblastoma nonprofit

How 2019 went. ♥

 
Beat Nb exists to help KIDS beat neuroblastoma and other childhood cancers. Here's what that looked like in 2019.
$1,250,000
committed to our research partners through 2019's work
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2,394,233
views of our social media posts
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271,900
minutes our videos were watched
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34,794
reactions to our posts

Follow along on Facebook, Instagram, and Twitter.

 
← by the way, these were the two most watched videos (47,200 min each!) →
↑ by the way, these were the two most watched videos (47,200 min each!) ↓
19

emails we sent (the most opened welcomed our new board chair, John Foley) Click the picture below to see our team!

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Fill this little form out to join our email list. ♥
2

new Beat Nb team members

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Micaela Sheinhait joins the team as our Community Engagement Director, based in the Boston area.

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AJ Hurley shares our impact visually as our Creative Director - or chief digital storyteller. He's in Tampa.

75
members in our newly launched Together monthly giving community
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1,308
unique donations made to our Falmouth Road Race fundraisers' pages - bringing our fundraising total for 8 years of running Falmouth to over $1,300,000!
Get on the 2020 Team
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(It's up to you whether you're joining more for the gorgeous 7.1 mile run and brilliant crowd, or for the post-race cookout with food and drink provided for you and your fam. We won't judge.)

How We Work

Our approach to beating cancer for kids is unique. When we began, we partnered with a bold researcher, Dr Giselle Sholler, to create a research consortium. This group of children's hospitals and research institutions provides an international network where kids can enter the clinical trials you're helping us fund.

Clinical trials usually go from ideation to enrolling kids in less than a year. This model allows for greater access to clinical research by families - it is often difficult for young families to travel out of state to access cutting-edge care.

We (Beat Nb) tell the stories, share the need, and raise funds to cover the costs of clinical trials and research.

This model is working. Our research partners - now at 49 sites - are bringing new therapeutic options to kids. Kids are living longer. We continue to work toward every child and family receiving a promise at diagnosis of "we know how to beat this."

Here's a look at what we're up to with the Beat Childhood Cancer consortium.

49

children's hospitals and research institutions as members of the Beat Childhood Cancer research consortium

1,029

children entered onto treatment clinical trials since 2006 (check out the chart below for a breakdown of those #s)

387

children entered onto biology studies since 2011 (check out the chart below for a breakdown of those #s)

Beat Childhood Cancer Enrollment by Year

These are kids actually enrolling on the clinical trials your dollars help to fund through our research partners.

21

total clinical trials opened or pending since 2006

6

clinical trials currently open or pending

16

members of the Beat Childhood Cancer Scientific Committee

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640

bottles of media used to feed our cells in 2019
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COMMUNITY

From the beginning, we've been made up of an inspiring group of parents and advocates pushing for better outcomes for kids fighting neuroblastoma and other childhood cancers. We continue to be effective by working alongside many passionate and action-oriented communities, often centered around a specific kid fighting cancer.

It's been said "if you want to see if there's good in the world, spend a day with a family whose child is fighting cancer." You will quickly be inspired by the way people around that family pour out their time, effort, and finances to help. Pair that with the deep gravity of the fact there's a KID fighting cancer... the good alongside the difficult makes you catch your breath, and moves us to tears almost daily.

Below are just some of the stories from our community this year. There are many, many stories we haven't shared here. At the core of what we do is one driving goal: for kids to beat cancer. And we are doing that. The beautiful friendships, tragic heartbreak, and inspiring moments we get to be a part of along the way are something we will cherish forever, and are so grateful to be a part of.

1429

square feet of the Harlow House, a home built from donated labor and materials in Evansville, WI. Proceeds from the home's sale helped fund the very clinical trial Harlow is beating cancer on! The home was purchased by a childhood cancer survivor.

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6" x 4.5"

Size of a postcard remembering Laurel Pearl Bares, featuring her ladybug art. Her mom, Leah, writes:

My daughter, Laurel Pearl, passed away on June 15, 2018 after bravely fighting neuroblastoma (pediatric cancer) for 16 months. She loved ladybugs and made this painting for me one day.

Laurel's family and community have organized several fundraisers in the Taunton, MA area in Laurel's memory, to change her story for the next family. We say her name often.

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170

Facebook fundraisers started by our community (maybe even you!).

Thank you!

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238.4

miles run through the woods of Kentucky and Indiana by Team Neva this year at Ragnar Kentuckiana. Neva is beating cancer in San Francisco - check out the video to learn a little more of her story!

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240

Google results for "Waylon Klitzman" cancer, a wonderful story of a caring young man in Wisconsin who auctioned off his pig to raise money for childhood cancer research. It wound up being sold and donated back for a total of 4 sales, and over $10,000!

Those Google results include articles in CNN and the Washington Post!

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Photo by Angela Major

2018 Audit Results

Revenue and Support


2018 (January 1 - December 31)

OPERATING REVENUE & OTHER SUPPORT 2018
Gifts, Grants, and Contributions             $ 590,043
Proceeds from Fund Raising Events 722,604
Less: Cost of Direct Benefits to Donors (194,348)
TOTAL SUPPORT AND REVENUES 1,118,299
EXPENSES  
Program Services (Childhood Cancer Clinical Trials and Research) 992,942
Administrative 83,289
Fund Raising 118,692
TOTAL EXPENSES 1,194,923
CHANGE IN NET ASSETS (76,624)
UNRESTRICTED NET ASSETS (BEGINNING OF YEAR) 104,256
UNRESTRICTED NET ASSETS (END OF YEAR) 27,632
83
percent of expenses went
directly to our mission of
helping KIDS beat cancer
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Growth in Total Revenue and Support


We continue to grow year over year (aside from an astounding 2014 when one donor gave $1 million!)

With your help, what started as a hope we could make a difference for kids fighting neuroblastoma has become an organization affecting real change.

As you read this we're already moving forward, changing the childhood cancer story for every family. Back to work!
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Beat Nb animated logo - neuroblastoma nonprofit

Beat Nb is a 501(c)(3)  •  Our EIN is 27-2314549  •  Home
The picture at the top of this page is Hannah. She's beating neuroblastoma in Sarasota, FL.