Beating Nb

In 2010, I founded Beat NB so there would be a consistent platform for all of you to support our mission to dramatically impact survival rates for children with neuroblastoma. I took this step out of necessity, because I wanted to fund treatments that could save my son – and every kid just like him – who had been told …

2015 Yearend Summary: A Letter from Beat Nb Co-Founder, Patrick Lacey

Dear Beat NB Supporters – Thanks to your extraordinary support over the past calendar year, we were able to send $800,000 to fund research and clinical trials in 2015. Whether you donated, hosted a fundraising event, sponsored an event, attended “Cure Me I’m Irish,” or ran in the Falmouth Road Race, you contributed to Beat NB’s accomplishments in 2015. Below …

Old drug may bring new hope to young cancer patients

ST. PETERSBURG (FOX 13) – For little Sofia Anderson, every moment with big brother Aiden is nothing short of precious. “When she feels great, those are the great days,” said Catalina Anderson, Sofia’s mother. “Every morning, we wake up and thank God we still have her.” This 2-year-old is battling a disease no child should. It’s a cancer called neuroblastoma. …

Because of Ezra: Bay area couple uses loss to help others

Because of Ezra: Bay area couple uses loss to help others Posted: Sep 15, 2014 3:03 PM EDT Updated: Oct 13, 2014 4:16 PM EDT By Stacie Schaible TAMPA, FL (WFLA) – The loss of a child leaves wounds so deep they never really heal. Robyn Matthews says “you don’t realize how many people ask you how many children you …

Karaoke event to fund pediatric cancer fight

Karaoke event to fund pediatric cancer fight Kathryn Bursch, WTSP 8:59 a.m. EDT September 8, 2014 St. Petersburg, Florida – Sadness for a Tampa couple has turned to song. But their tune is a fight song — a fight against cancer. For Kyle and Robyn Matthews, both their joy and sorrow spring from their son Ezra. The toddler died just …

2014 NMTRC Symposium in Grand Rapids, MI

Each year, the NMTRC (Neuroblastoma & Medulloblastoma Translational Research Consortium – nmtrc.org) holds a conference discussing the advances made in neuroblastoma research in the past year, and the direction their group is focusing on for the future. This is our 4th year attending (we also wrote about the 2012 and 2013 events). This year, over 120 physicians, researchers, parents, and non-profit …

Over $150,000 to Research in 2013

This past weekend we were in Grand Rapids, Michigan filming the story of an incredibly cute Irish neuroblastoma warrior named Lily Mae (look for that soon – and thank you for letting us share your story, Lily Mae and family!). Temperatures were in the single digits, and everyone was freezing. As I watched Lily Mae dance around, singing her heart …

What’s Going on in Neuroblastoma Research – 2013 NMTRC Symposium

The NMTRC (Neuroblastoma & Medulloblastoma Translational Research Consortium) is a group of 18 universities and children’s hospitals headquartered in Grand Rapids, MI which offer a nationwide network of childhood cancer clinical trials. The group is chaired by Dr Giselle Sholler. These trials are based on the research from a group of closely collaborating investigators who are linked with laboratory programs developing novel therapies …

Gasparilla Distance Classic 2013 – Nearly $9,000 Raised!

What a great weekend running for Ezra and all his fellow neuroblastoma fighters! This was our third year running the Publix Gasparilla Distance Classic, and it was so good to see everyone out there! A huge thank you to all the runners, walkers, and strollers who came out and ran with us, raising nearly $9,000 to benefit research into a …