we’re beating cancer

FOR KIDS
through effective & innovative hope-giving clinical trials

 

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→ Read the Boston Globe’s five part series on our founder’s son, Will Lacey,
and the work we’re doing to beat neuroblastoma.

The Problem: Neuroblastoma

Neuroblastoma is the most common cancer in infants. It is a solid tumor cancer that affects children. Every 14 hours, a child is diagnosed with the disease.

Although most kids get to remission, nearly half those kids relapse – and there’s no cure for relapsed neuroblastoma.

Our Goals

1) Measurably impact neuroblastoma survival every year.

2) Increase survival to greater than 90% by 2027.

3) Discover targeted drugs to decrease toxicity, increase quality of life, and increase long term (greater than 5 year) survival.

 

How We’re Beating Nb

We helped found and continue to fund a global research consortium called Beat Childhood Cancer. Through this consortium, research is happening in 45+ hospitals and research institutions nationally, along with 2 international locations.

Our short term goal is preventing relapse and increasing survival using a drug called DFMO. In the long term, our work with precision medicine is helping us find existing FDA approved drugs targeting common pathways in neuroblastoma. Partnering with companies like Dell and other great organizations, the work we’re helping to fund is leading the genomics charge in childhood cancer, and has been since 2010.

The Cost

With $25 million, over 10 years, we will beat neuroblastoma. Our goal is to raise these funds by December 31st, 2022 (a total of 5 years).

  • Ensure access to DFMO for all children with nb.
  • Research infrastructure costs for 10 years.
  • Expansion of the consortium to 40 sites in the US, and multiple Canadian sources. Adding 3 clinical trials per year around targeted drugs discovered through our molecularly guided therapy trials.

We Will Beat Nb

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