neuroblastoma

What is Neuroblastoma?

Neuroblastoma (NB) is cancer that affects children. It is among the most common childhood tumors, accounting for 15% of all pediatric cancer deaths. Neuroblastoma typically affects kids under five years old and is not usually diagnosed until the tumor grows and presents symptoms. The majority of childhood neuroblastoma cases are aggressive, showing survival rates of less than 30% with standard chemotherapy, and a disturbing 50% relapse rate. Once relapsed, there is currently no curative treatment, and for those under five years old, the survival rate is less than ten percent. As such, new therapeutic approaches are urgently needed to treat these children.

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How Does Beat NB Help?

Since its inception, Beat NB has raised nearly $2 million to help fund the discovery of new, effective therapies to increase survival and decrease the mortality associated with neuroblastoma. To accomplish this, our work supports the NMTRC, a national translational research consortium – funded through the Helen DeVos Children’s Hospital in Grand Rapids Michigan – which is dedicated to finding a cure for kids with cancer. This fund is supported by many nonprofits, groups, annual events, and families, all sharing the same mission – to BEAT NB.

The founder of Beat NB cancer foundation, Patrick Lacey, recently shared a 2015 yearend summary, highlighting the accomplishments of our organization over just one year. Our efforts are also summed up nicely in this presentation he gave at the NMTRC conference in 2011.

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Why is Beat NB Different?

The NB fund is unique, in that the language for this fund was crafted by a neuroblastoma parent and it is solely dedicated to helping save kids afflicted with neuroblastoma. In fact, over the past calendar year, we were able to send $800,000 to fund research and clinical trials in 2015. Of course, there are many organizations supporting childhood cancer research, but Beat NB helps fund clinical trials proven to better the lives of these children now.

Beat NB was established in 2010 by Patrick Lacey after his son, Will, was diagnosed with neuroblastoma at the age of 7 months. Through his experience, Pat encountered firsthand how little hope families, such as his, were given for their child’s survival.

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When can I donate?

Now! Neuroblastoma is a relentless form of childhood cancer, often devastating young children, (babies!) and leaving their families feeling despaired. Our organization provides hope. Not blind hope, but real, justifiable hope for these kids to experience birthday parties, first days of school, small milestones, and mountain-moving triumphs. Today, there’s new, personalized, unique strategies enabling kids to combat the cancer, and this is what our organization funds. Read more to discover why our process is different, but yet incredibly essential, and please consider making a gift to ease a child’s battle.

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Falmouth Road Race 2016

This summer’s Falmouth Road Race takes place August 21, 2016. Beat NB will have over 200 runners, with a fundraising requirement of $1,000 each!



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